Research Article

Perceived Caregiver Strain, 3- and 18-Month Poststroke, in a Cohort of Caregivers from the Life after Stroke Trial (LAST)

Table 2

All reported answers of Caregiver Strain Index (CSI) items at baseline 3 and 18-month follow-up. The yes/no answers are reported in frequencies (n) and percentages (%). In addition, a total score of more than 7 positive answers is reported reflecting a high burden of caregiver strain.

CSI itemsBaseline 3 months18 months

My sleep is disturbed(n = 269)(n = 175)
Yes42 (16%)20 (11%)
No227 (84%)155 (89%)
Caregiving is inconvenient(n = 266)(n = 170)
Yes32 (12%)14 (8%)
No234 (88%)156 (82%)
Caregiving is a physical strain(n = 264)(n = 174)
Yes12 (5%)4 (2%)
No252 (95%)170 (98%)
Caregiving is confining(n = 266)(n = 174)
Yes63 (24%)23 (13%)
No203 (76%)151 (87%)
There have been family adjustments(n = 266)(n = 172)
Yes41 (15%)17 (10%)
No225 (85%)155 (90%)
There have been changes in personal plans(n = 265)(173)
Yes72 (27%)26 (15%)
No193 (73%)147 (85%)
There have been other demands on my time(n = 267)(n = 173)
Yes46 (17%)12 (7%)
No221 (83%)161 (93%)
There have been emotional adjustments(n = 264)(n = 174)
Yes69 (26%)29 (17%)
No195 (74%)145 (83%)
Caregiving is a financial strain(n = 267)(n = 174)
Yes15 (6%)7 (4%)
No252 (94%)167 (96%)
I feel completely overwhelmed(n = 266)(n = 172)
Yes78 (29%)31 (18%)
No188 (71%) (n = 242)141 (82%) (n = 122)
(i) Total score of 7 positive answersn = 10 (4%)n = 15 (12%)