Research Article

Perceived Caregiver Strain, 3- and 18-Month Poststroke, in a Cohort of Caregivers from the Life after Stroke Trial (LAST)

Table 4

All answers of the Caregiver strain index (CSI) at baseline and 18-month (mo) follow-up in groups divided in age groups 0–79 years and >80 years, with yes/no answers in answer frequencies (n) and percentages (%).

Baseline18 moBaseline18 mo

Items (n; %)Age 0–79 n = 197Age 0–79 n = 139Age ≥ 80 n = 72Age ≥ 80 n = 36

My sleep is disturbed
Yes29 (15%)13 (9%)13 (18%)7 (19%)
No168 (85%)126 (91%)59 (82%)29 (81%)

Caregiving is inconvenient
Yes18 (9%)5 (4%)14 (19%)9 (26%)
No176 (91%)130 (96%)58 (81%)26 (74%)

Caregiving is a physical strain
Yes9 (5%)3 (2%)3 (4%)1 (3%)
No186 (95%)135 (98%)66 (96%)35 (97%)

Caregiving is confining
Yes46 (24%)12 (9%)17 (24%)11 (31%)
No149 (76%)126 (91%)54 (76%)25 (69%)

There have been family adjustments
Yes26 (13%)10 (7%)15 (21%)7 (21%)
No168 (87%)128 (93%)57 (79%)27 (79%)

There have been changes in personal plans
Yes50 (26%)16 (12%)22 (31%)10 (28%)
No145 (74%)121 (88%)48 (69%)26 (72%)

There have been other demands on my time
Yes34 (17%)9 (7%)12 (17%)3 (8%)
No162 (83%)128 (93%)59 (83%)33 (92%)

There have been emotional adjustments
Yes53 (27%)18 (13%)16 (24%)11 (69%)
No143 (73%)120 (87%)52 (76%)25 (31%)

Caregiving is a financial strain
Yes9 (5%)7 (5%)6 (9%)35 (100%)
No188 (95%)132 (95%)64 (91%)

I feel completely overwhelmed
Yes59 (30%)24 (18%)19 (27%)7 (20%)
No137 (70%)113 (82%)51 (73%)28 (80%)