The Importance of Connection to Others in QoL in MSA and PSP
Table 2
Two criteria used to demonstrate quality and validity in qualitative work and how they apply to this study. From Tong et al. [22] and Yardley [23].
COREQ domain checklist summary
Yardley’s qualitative validity criteria
Sampling method: purposive, pragmatic sampling
Sensitivity: study designed with respect to known literature with respect to patient input (patient/carer group consulted in design)
Setting: participant’s homes or clinical research facility (choice given). One-to-one interviewing
Commitment and rigour: LW experienced in movement disorder and specialising in AP. Extensive review of literature, training in interviewing methods, and analysis overseen by KB, an academic with many years of experience in qualitative research
Method: thematic analysis. NVivo v. 11.0 used as analysis aid
Transparency: methods described in methods section, process used shown in Figure 1. Disclosure of researcher background and assumptions given
How was data recorded: recorded on digital device and transcribed verbatim
Impact and importance: having implications for planning of future services for AP and for improving best practice. Potential to impact QoL in a rare, underresearched group of conditions. Demonstrating the need for more work in the future
Description of themes: themes derived from data, not preselected then imposed
Supporting extracts: quotations used throughout report