Research Article
Advance Directives of German People with Parkinson’s Disease Are Unspecific in regard to Typical Complications
Table 3
Patient-assessed information about writing of ADs (N = 82).
| | Item | Answer option | N = 82 |
| | Time since AD creation (years) | Mean | 6.2 ± 5.4 | | Range | 0–38 | | Missing data | 4 (4.9%) |
| | AD is dated | Yes | 74 (90.3%) | | No | 2 (2.4%) | | Missing data | 6 (7.3%) |
| | AD contains personal data of the patient | Full name | 73 (89.0%) | | Postal address | 59 (71.9%) | | Contact details | 6 (7.3%) | | No personal data | 6 (7.3%) |
| | Use of aids | From German Parkinson Association | 4 (4.9%) |
| | Format used in AD | Letter | 31 (37.8%) | | Official document | 45 (54.9%) | | Missing data | 6 (7.3%) |
| | Advice from (multiple answers possible) | Wife/husband/partner | 66 (80.5%) | | Notary/lawyer | 29 (35.4%) | | Family members (other than spouse) | 28 (34.1%) | | Family physician | 25 (30.5%) | | Friends | 17 (20.7%) | | Patient support group | 7 (8.5%) | | Neurologist | 4 (4.9%) | | Religious counsellor | 3 (3.6%) | | Others | 6 (7.3%) |
| | Healthcare proxies named in AD | Yes | 78 (95.1%) | | No | 3 (3.7%) | | Missing data | 1 (1.2%) |
| | Healthcare proxies relationship to patient (multiple answers possible) | Wife/husband/partner | 64 (82.1%) | | Children | 50 (64.1%) | | Friends | 3 (3.9%) | | Family members | 1 (1.3%) | | Others | 3 (3.9%) |
| | Intensity of previous conversation with proxy (n = 78) | Extensive conversations | 59 (75.6%) | | Brief conversations | 18 (23.1%) | | No conversations | 1 (1.3%) |
| | AD signed by (multiple answers possible) | Patient | 81 (98.8%) | | Wife/husband/partner | 18 (21.9%) | | Family physician | 12 (14.6%) | | Children | 9 (11.0%) | | Notary | 5 (6.1%) | | Friends | 2 (2.4%) | | Lawyer | 1 (1.2%) | | Other persons | 2 (2.4%) | | Missing data | 1 (1.2%) |
| | Location of deposit (multiple answers possible) | Patients’ homes | 76 (92.7%) | | Family physician’s practice | 27 (32.9%) | | Family member’s home | 26 (31.7%) | | Chamber of notaries/central registers | 7 (8.5%) | | Notary/lawyer | 7 (8.5%) | | Hospital/special outpatient clinic | 3 (3.7%) | | Friend’s home | 3 (3.7%) | | Neurologist’s practice | 2 (2.4%) | | Other locations | 4 (4.9%) | | Missing data | 1 (1.2%) |
| | Changes made since initial version | Yes | 20 (24.4%) | | No | 61 (74.4%) | | Missing data | 1 (1.2%) |
| | Time between initial version and changes (years) (n = 20) | Mean | 6.8 ± 4.6 | | Range | 0.25–13 | | Missing data | 3 (15.0%) |
|
|
SD, standard deviation; PD, Parkinson’s disease; AD, advance directive.
|
