Satisfaction with Care in Late Stage Parkinson’s Disease

Table 2

Univariate associations with patients’ satisfaction with care ().

	Satisfied, (59%)	Not satisfied, (41%)	value	Missing (n)
Gender, n (%)			0.937	—
Men	33 (59%)	23 (41%)
Women	25 (58%)	18 (42%)
Age (years), median (q1–q3)	79 (75–84)	78 (73–84)	0.357	—
Age at onset (years), median (q1–q3)	63 (57–70)	63 (53–72)	0.721	—
PD duration (years), median (q1–q3)	15 (12–18)	14 (10–19)	0.644	—
Dwelling place, n (%)			0.775	—
Home	37 (60%)	25 (40%)
Nursing home	21 (57%)	16 (43%)
HY stage, n (%)			0.977	—
IV	44 (59%)	31 (41%)
V	14 (58%)	10 (42%)
Partner, n (%)			0.631	—
Yes	34 (57%)	26 (43%)
No	24 (62%)	15 (38%)
Professional home health care in home/nursing home, n (%)			0.773	—
Yes	48 (59%)	33 (41%)
No	10 (56%)	8 (44%)
Professional health-care contact
MDS and/or PD-nurse (past year), n (%)			0.773	—
Yes	38 (58%)	28 (42%)
No	20 (61%)	13 (39%)
PT and/or OT and/or SLT (past 3 months), n (%)			0.270	—
Yes	26 (53%)	23 (47%)
No	32 (64%)	18 (36%)
Independence in ADL (Katz ADL index), median (q1–q3)	3 (1–5)	1 (0–4)	0.044	1/1
Dependent (severe functional impairment; ≤ 2), n (%)	25 (49%)	26 (51%)	0.042
Clinical assessments
Motor function (UPDRS III), median (q1–q3)	40 (29–51)	37 (27–52)	0.901	—
Nonmotor symptoms (NMSS), median (q1–q3)	85 (52–121)	92 (61–133)	0.414	—
Cognitive function (MMSE), median (q1–q3)	23 (18–26)	24 (19.5–28)	0.282	2/-
Depressive symptoms (GDS–30), median (q1–q3)	10 (6–13)	14 (10–19)	0.005	2/-
Depression (GDS ≥ 10), n (%)	29 (48%)	31 (52%)	0.019
Health and quality of life related assessments
Generic health status (EQ-5D), median (q1–q3)	0.23 (0.07–0.62)	0.15 (−0.02–0.52)	0.062	—
VAS, median (q1–q3)	50 (35–67)	45 (30–60)	0.176	3/-
Individual QoL (SEIQoL-Q), median (q1–q3)	61 (46–74)	51 (39–62)	0.036	12/7
Self-rated health status (NHP), n (%)
Emotional reactions: better/worse	39 (59%)/13 (52%)	27 (41%)/12 (48%)	0.542	6/2
Sleep: better/worse	41 (59%)/15 (58%)	28 (41%)/11 (42%)	0.879	2/2
Energy: better/worse	23 (72%)/32 (52%)	9 (28%)/30 (48%)	0.062	3/2
Pain: better/worse	36 (62%)/19 (56%)	22 (38%)/15 (44%)	0.559	3/4
Physical mobility: better/worse	16 (62%)/40 (59%)	10 (38%)/28 (41%)	0.810	2/3
Social isolation: better/worse	46 (62%)/9 (45%)	28 (38%)/11 (55%)	0.171	3/2
NHP index of distress 0–100: better/worse	40 (61%)/12 (48%)	26 (39%)/13 (52%)	0.337	6/2
Life satisfaction (LiSat-11), n (%)
Life as a whole: high/low	16 (76%)/38 (52%)	5 (24%)/35 (48%)	0.055	4/1
Vocational situation: high/low	6 (60%)/46 (56%)	4 (40%)/36 (44%)	0.814	7/1
Financial situation: high/low	35 (65%)/18 (46%)	19 (35%)/21 (54%)	0.075	5/1
Leisure: high/low	10 (63%)/43 (56%)	6 (38%)/34 (44%)	0.625	5/1
Contacts with friends/acquaintances: high/low	25 (63%)/28 (53%)	15 (38%)/25 (47%)	0.352	5/1
Sexual life: high/low	6 (67%)/47 (56%)	3 (33%)/37 (44%)	0.540	5/1
Self-care management: high/low	6 (86%)/47 (55%)	1 (14%)/39 (45%)	0.145	5/1
Family life: high/low	29 (64%)/24 (50%)	16 (36%)/24 (50%)	0.161	5/1
Partner relationship: high/low	25 (64%)/28 (53%)	14 (36%)/25 (47%)	0.282	5/2
Somatic health: high/low	9 (90%)/44 (53%)	1 (10%)/39 (47%)	0.054	5/1
Psychological health: high/low	22 (65%)/31 (53%)	12 (35%)/28 (47%)	0.256	5/1

Satisfaction with care (study-specific question), satisfied = patients reporting alternative 1 or 2 on the question satisfaction with care (score range 1–5, higher = worse; 1 = very satisfied, 2 = satisfied, 3 = neutral, 4 = unsatisfied, 5 = very unsatisfied), not satisfied = patients reporting alternative 3, 4, or 5 on the question satisfaction with care. q1–q3, first and third quartiles; HY, Hoehn and Yahr Staging Scale (score range I–V, higher = worse); MDS, movement disorder specialist contact during the past year; PD-nurse, Parkinson nurse contact during the past year; physiotherapist/occupational therapist/speech and language therapist, contact during the past three months; Katz ADL, Katz index of independence in activities of daily living (score range 0–6, higher = better); UPDRS, Unified PD Rating Scale, part III = motor examination (score range 0–108, higher = worse); NMSS, Nonmotor Symptoms Scale (0–360, higher = worse); MMSE, Mini-Mental State Examination (score range 0–30, higher = better); GDS-30, Geriatric Depression Scale (score range 0–30, higher = worse), depression = scores ≥ 10. EQ-5D-3L, EuroQol 5 Dimensions Index (score range 0–1, higher = better); VAS, visual analogue scale (score range 0–100, higher = better); SEIQoL-Q, Schedule for the Evaluation of Individual Quality of Life (score range 0–100, higher = better); NHP, the Nottingham Health Profile (score range 0–100 in each section, higher = worse; dichotomized as better = 0, worse = 1); LiSat-11, Life Satisfaction Questionnaire (each item score range 1–6, higher = better; dichotomized as not satisfied = 0, satisfied = 1). values based on simple logistic regression analyses. Bold values statistically significant at .