Research Article
Satisfaction with Care in Late Stage Parkinson’s Disease
Table 3
Univariate associations with informal caregivers’ satisfaction with support ().
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Satisfaction with support (study-specific question), satisfied = informal caregivers reporting alternative 1 or 2 on the question satisfaction with care (score range 1–5, higher = worse; 1 = very satisfied, 2 = satisfied, 3 = neutral, 4 = unsatisfied, 5 = very unsatisfied), not satisfied = informal caregivers reporting alternative 3, 4, or 5 on the question satisfaction with care. q1–q3, first and third quartiles; HY, Hoehn and Yahr Staging Scale (score range I–V, higher = worse); MDS, movement disorder specialist contact during the past year; PD-nurse, Parkinson nurse contact during the past year; physiotherapist/occupational therapist/speech and language therapist, contact during the past three months; Katz ADL, Katz index of independence in activities of daily living (score range 0–6, higher = better); UPDRS, Unified PD Rating Scale, part III = motor examination (score range 0–108, higher = worse); NMSS, Nonmotor Symptoms Scale (0–360, higher = worse); MMSE, Mini-Mental State Examination (score range 0–30, higher = better); GDS-30, Geriatric Depression Scale (score range 0–30, higher = worse), depression = scores ≥ 10. EQ-5D-3L, EuroQol 5 Dimensions Index (score range 0–1, higher = better); VAS, visual analogue scale (score range 0–100, higher = better); SEIQoL-Q, Schedule for the Evaluation of Individual Quality of Life index (score range 0–100, higher = better); LiSat-11, Life Satisfaction Questionnaire (item 1, score range 1–6; dichotomized as not satisfied = 0, satisfied = 1) ACQLI, Alzheimer’s Carer’s Quality of Life Inventory (score range 0–30, higher = worse). 30 missing (primarily due to nonapplicable). HY IV , HY V ; 6 (21%) of the patients living in nursing home; 10 (56%) of the patients living in nursing home. values based on simple logistic regression analyses. Bold values statistically significant at . |