Satisfaction with Care in Late Stage Parkinson’s Disease

Table 6

Informal caregivers’ satisfaction with support, when the patient lives at home (n = 49).

	Satisfied, (51%)	Not satisfied, (49%)	value	Missing (n)
HY stage, n (%)			0.032	—
IV	17 (43%)	23 (58%)
V	8 (89%)	1 (11%)
Patient clinical assessments
Motor function (UPDRS III), median (q1–q3)	37 (31–54)	32 (26–42)	0.092	—
Nonmotor symptoms (NMSS), median (q1–q3)	89 (47–133)	93 (60–118)	0.621	1/-
Cognitive function (MMSE), median (q1–q3)	23 (21–28)	23 (19–27)	0.521	3/-
Depressive symptoms (GDS-30), median (q1–q3)	10 (8–18)	12 (8–20)	0.686	3/1
Depression (GDS ≥10), n (%)	13 (48%)	14 (52%)	0.903

Satisfaction with support (study-specific question), satisfied = patients reporting alternative 1 or 2 on the question satisfaction with care (score range 1–5, higher = worse; 1 = very satisfied, 2 = satisfied, 3 = neutral, 4 = unsatisfied, 5 = very unsatisfied), not satisfied = patients reporting alternative 3, 4, or 5 on the question satisfaction with care. q1–q3, first and third quartiles; HY, Hoehn and Yahr Staging Scale (score range I–V, higher = worse); UPDRS, Unified PD Rating Scale, part III = motor examination (score range 0–108, higher = worse); NMSS, Nonmotor Symptoms Scale (0–360, higher = worse); MMSE, Mini-Mental State Examination (score range 0–30, higher = better); GDS-30, Geriatric Depression Scale (score range 0–30, higher = worse), depression = scores ≥ 10. Bold values statistically significant at .