Research Article

Attitude of Asian Parkinson Patients towards Clinical Research and Tissue Donation

Table 2

Positive responses to questions assessing patient’s attitudes and preferences towards participation in clinical research (n = 105).

Questionn (%)

(1) Have you been asked to participate in clinical research?
 (i) If yes, did you agree to participate in that clinical research? (n = 40)22 (55)
 (ii) If no, would you be interested to participate in clinical research related to your neurological condition? (n = 65)29 (45)
(2) I am keen on participating in clinical research despite understanding that the prescribed treatment may have a small risk of possible side effects.50 (48)
(3) It is important for the investigator to inform me about the results from a clinical research which I have participated in.88 (84)
(4) Results of clinical research are still worth reporting even if the treatments were seen to be ineffective.87 (83)
(5) My treating physician should inform me about any clinical research of interest.81 (77)
(6) Most organizations conducting clinical research have taken all reasonable precautions to ensure participant’s safety.83 (79)
(7) Most organizations conducting clinical research have taken all reasonable precautions to safeguard participant’s privacy.85 (81)
(8) Most of the current treatments in medicine are a result of evidence gained from past clinical research.75 (71)
(9) Conducting clinical research help medical professionals treat and understand my medical condition better.86 (82)

Positive responses were “yes” to “yes/no” questions and “agree” or “strongly agree” to questions with Likert scale responses ranging from 1 to 5 as follows: (1) strongly agree, (2) agree, (3) neutral, (4) disagree, and (5) strongly disagree. n = number (percentage).