Attitude of Asian Parkinson Patients towards Clinical Research and Tissue Donation
Table 4
Reasons of unwillingness to participate in clinical research (n = 54).
Reason
n (%)†
(1) I feel that the risk of participating is too high.
23 (43)
(2) I do not have time to participate.
18 (33)
(3) I feel my immobility will make participation difficult.
13 (24)
(4) My privacy might be lost as a result of the clinical research.
4 (7)
(5) My family was not keen for me to participate.
3 (6)
(6) I believe it will not help improve my medical condition.
3 (6)
(7) It is too complicated of a process.
3 (4)
(8) I am skeptical about research and its benefits.
2 (4)
(9) I have a conservative mindset.
2 (4)
(10) I have no one to accompany me to the venue.
2 (4)
(11) I am unable to think of any reasons.
2 (4)
(12) I have a fear of procedures involving injections/blood collection.
1 (2)
(13) I have a fear of procedures done in confined places.
1 (2)
(14) I do not feel comfortable participating.
1 (2)
(15) I feel that participating in clinical trials is secondary to coming to terms with my condition.
1 (2)
(16) I have no interest in these activities and prefer to stay at home.
1 (2)
Sample size includes patients with negative responses as well as those who answered “neutral” or “not sure” in the corresponding base question. †n = number (percentage).
