Research Article

Self-Management Education for Persons with Parkinson’s Disease and Their Care Partners: A Quasi-Experimental Case-Control Study in Clinical Practice

Table 3

Differences between care partners and persons with Parkinson’s disease before and after seven weeks of participation in the National Parkinson School (intervention group) and after seven weeks of ordinal care (control group).

Intervention group (n = 30)Control group (n = 25)-value

Health valuation (EQ5D)Baseline0.93 (0.88–0.97)0.93 (0.88–0.97)0.508
Follow-up0.97 (0.88–0.97)0.93 (0.88–0.97)0.251
-value0.8370.944

Life satisfaction (LiSat-11)
 Life as a wholeBaseline5 (4–5)5 (4–6)0.302
Follow-up5 (4–5)5 (4–6)0.802
-value0.4140.035

 VocationBaseline5 (4–5)5 (4–5.75)0.388
Follow-up5 (4.25–5)5 (4–5)0.261
-value0.6550.109

 EconomyBaseline5 (5–5)5 (5–5.25)0.515
Follow-up5 (4–5.25)5 (4–5)0.945
-value0.3170.132

 LeisureBaseline5 (4–5)5 (4.75–5)0.072
Follow-up5 (4–5)5 (4–5)0.964
-value0.2480.206

 ContactsBaseline5 (5–5)5 (4–5.25)0.666
Follow-up5 (4–5)5 (4–6)0.671
-value0.3660.564

 Sexual lifeBaseline4 (2–5)4 (3.5–5)0.509
Follow-up4 (3–5)4 (2.25–5)0.776
-value0.4910.417

 ADLBaseline6 (5–6)6 (5–6)0.586
Follow-up6 (5–6)6 (5.25–6)0.486
-value0.8910.317

 Family lifeBaseline5 (4–6)5.5 (5–6)0.227
Follow-up6 (5–6)6 (5–6)0.801
-value0.2900.655

 Partner relationshipBaseline6 (5–6)6 (5–6)0.773
Follow-up6 (5–6)6 (5–6)0.792
-value0.7630.705

 Somatic healthBaseline5 (4–5)5 (4–5)0.805
Follow-up5 (5–5)5 (4–5)0.659
-value0.7390.655

 Psychological healthBaseline5 (5–6)5 (4.75–6)0.371
Follow-up5 (5–6)5 (4.5–6)0.851
-value0.2790.180

 Fatigue (PFS-16)Baseline9 (0–17.75)5 (1–19)0.661
Follow-up6 (0–20)11.5 (1.25–25)0.296
-value0.6780.138

 Caregiver burden (ZBI-22)Baseline7 (3–13)6 (0.75–12.5)0.495
Follow-up8 (3.25–12.75)5 (2–13.25)0.659
-value0.0900.548

Data are median (q1-q3). Mann–Whitney U test for comparisons between intervention and control groups. Wilcoxon’s signed rank test for comparisons between baseline and follow-up within intervention and control groups. Possible scores, 0-1 (1 = better valued health state). Possible scores, 1–6 (6 = higher life satisfaction). Possible scores, 0–64 (64 = more fatigue). Possible scores, 0–48 (48 = more burden). EQ5D: the 5-dimensional EuroQol questionnaire; LiSat-11: the 11-item Life Satisfaction Checklist; PFS-16: the 16-item Parkinson Fatigue Scale; zbi-22: the 22-item Zarit Burden Interview.