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Psychiatry Journal
Volume 2015 (2015), Article ID 627345, 7 pages
http://dx.doi.org/10.1155/2015/627345
Research Article

Prevalence and Factors Associated with Perceived Stigma among Patients with Epilepsy in Ethiopia

1Amanuel Mental Specialized Hospital, Addis Ababa, Ethiopia
2Department of Psychiatry, Faculty of Medicine and Health Science, University of Gondar, Gondar, Ethiopia

Received 18 May 2015; Revised 30 July 2015; Accepted 22 August 2015

Academic Editor: Veit Roessner

Copyright © 2015 Tolesa Fanta et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Linked References

  1. M. Kabir, Z. Iliyasu, I. S. Abubakar, Z. S. Kabir, and A. U. Farinyaro, “Knowledge, attitude and beliefs about epilepsy among adults in a northern Nigerian urban community,” Annals of African Medicine, vol. 4, no. 3, pp. 107–112, 2005. View at Google Scholar · View at Scopus
  2. J. W. Sander, “The epidemiology of epilepsy revisited,” Current Opinion in Neurology, vol. 16, no. 2, pp. 165–70, 2003. View at Google Scholar
  3. A. Jacoby and G. Baker, Quality of Life in Epilepsy: Beyond Seizure Counts in Assessment and Treatment, Psychology Press, 2001.
  4. World Health Organization (WHO), Initiative of Support to People with Epilepsy, Division of Mental Health, Geneva, Switzerland, 1990.
  5. R. Tekle-Haimanot, M. Abebe, L. Forsgren et al., “Attitudes of rural people in central Ethiopia toward epilepsy,” Social Science and Medicine, vol. 32, no. 2, pp. 203–209, 1991. View at Publisher · View at Google Scholar · View at Scopus
  6. R. Tekle-Haimanot, M. Abebe, A. Gebre-Mariam et al., “Community-based study of neurological disorders in rural central Ethiopia,” Neuroepidemiology, vol. 9, no. 5, pp. 263–277, 1990. View at Publisher · View at Google Scholar · View at Scopus
  7. R. Tekle-Haimanot, L. Forsgren, and J. Ekstedt, “Incidence of epilepsy in rural central Ethiopia,” Epilepsia, vol. 38, no. 5, pp. 541–546, 1997. View at Publisher · View at Google Scholar · View at Scopus
  8. H. Wim and M. D. van Brakel, “Measuring health-related stigma,” vs2.doc.2005:3.
  9. P. T. Fernandes and E. A. P. De Souza, “Identification of family variables in parents' groups of children with epilepsy,” Arquivos de Neuro-Psiquiatria, vol. 59, no. 4, pp. 854–858, 2001. View at Publisher · View at Google Scholar · View at Scopus
  10. N. Buchanan, Understanding Epilepsy: What It Is and How It Can Affect Your Life, Simon & Schuster, Sydney, Australia, 2002.
  11. M. Bishop and B. Hermann, “Impact of epilepsy on quality of life: a review,” in Quality of Life in Epilepsy: Beyond Seizure Counts in Assessment and Treatment, G. A. Baker and A. Jacoby, Eds., pp. 103–120, Harwood Academic, Amsterdam, The Nrtherlands, 2000. View at Google Scholar
  12. E. Goffman, Stigma: Notes on the Management of Spoiled Identity, Touchstone, New York, NY, USA, 1963.
  13. W. M. McLin and H. M. de Boer, “Public perceptions about epilepsy,” Epilepsia, vol. 36, no. 10, pp. 957–959, 1995. View at Publisher · View at Google Scholar · View at Scopus
  14. J. A. Collings, “Psychosocial well-being and epilepsy: an empirical study,” Epilepsia, vol. 31, no. 4, pp. 418–426, 1990. View at Publisher · View at Google Scholar · View at Scopus
  15. L. L. Min and J. W. A. S. Sander, “National demonstration project on epilepsy in Brazil,” Arquivos de Neuro-Psiquiatria, vol. 61, no. 1, pp. 153–156, 2003. View at Publisher · View at Google Scholar · View at Scopus
  16. C. A. Guerreiro, M. M. Guerreiro, F. Cendes, and I. Lopes-Cendes, “Considerações gerais,” in Lemos Editorial, pp. 1–10, Epilepsia, São Paulo, Brazil, 2000. View at Google Scholar
  17. J. Ablon, “The nature of stigma and medical conditions,” Epilepsy & Behavior, vol. 3, no. 6, pp. 2–9, 2002. View at Publisher · View at Google Scholar
  18. A. Jacoby, “Stigma, epilepsy, and quality of life,” Epilepsy & Behavior, vol. 3, pp. 10–20, 2002. View at Google Scholar
  19. W. M. McLin and H. M. de Boer, “Public perceptions about epilepsy,” Epilepsia, vol. 36, no. 10, pp. 957–959, 1995. View at Publisher · View at Google Scholar · View at Scopus
  20. P. T. Fernandes and L. M. Li, Estigmanaepilepsia [Ph.D. thesis], Departamento de Neurologia—FCM/UNICAMP, 2005.
  21. P. T. Fernandes, P. C. B. Salgado, A. L. A. Noronha, F. D. Barbosa, E. A. P. Souza, and L. M. Li, “Stigma scale of epilepsy: conceptual issues,” Journal of Epilepsy and Clinical Neurophysiology, vol. 10, no. 4, pp. 213–218, 2004. View at Google Scholar · View at Scopus
  22. M. Rätsepp, A. Õun, S. Haldre, and A.-E. Kaasik, “Felt stigma and impact of epilepsy on employment status among Estonian people: exploratory study,” Seizure, vol. 9, no. 6, pp. 394–401, 2000. View at Publisher · View at Google Scholar · View at Scopus
  23. H. M. de Boer, M. Mula, and J. W. Sander, “The global burden and stigma of epilepsy,” Epilepsy and Behavior, vol. 12, no. 4, pp. 540–546, 2008. View at Publisher · View at Google Scholar · View at Scopus
  24. G. Scambler and A. Hopkins, “Generating a model of epileptic stigma: the role of qualitative analysis,” Social Science & Medicine, vol. 30, no. 11, pp. 1187–1194, 1990. View at Publisher · View at Google Scholar · View at Scopus
  25. R. Ryan, K. Kempner, and A. C. Emlen, “The stigma of epilepsy as a self-concept,” Epilepsia, vol. 21, no. 4, pp. 433–444, 1980. View at Publisher · View at Google Scholar · View at Scopus
  26. J. L. Dell, “Social dimensions of epilepsy, stigma and response,” in Psychopathology in Epilepsy: Social Dimensions, S. Whitman and B. P. Hermann, Eds., Oxford University Press, New York, NY, USA, 1986. View at Google Scholar
  27. L. M. Li, P. T. Fernandes, A. L. Noronha et al., “Demonstration project on epilepsy in Brazil: situation assessment,” Arquivos de Neuro-Psiquiatria, vol. 65, supplement 1, pp. 5–13, 2007. View at Google Scholar
  28. A. Kleinman, W.-Z. Wang, S.-C. Li et al., “The social course of epilepsy: chronic illness as social experience in interior China,” Social Science and Medicine, vol. 40, no. 10, pp. 1319–1330, 1995. View at Publisher · View at Google Scholar · View at Scopus
  29. M. Ahmad, “Epilepsy: stigma and management,” Current Research in Neuroscience, vol. 1, no. 1, pp. 1–14, 2011. View at Publisher · View at Google Scholar
  30. G. A. Baker, J. Brooks, D. Buck, and A. Jacoby, “The stigma of epilepsy: a European perspective,” Epilepsia, vol. 41, no. 1, pp. 98–104, 2000. View at Publisher · View at Google Scholar · View at Scopus
  31. W. van Brakeletal, ILEP Guidelines to Reduce Stigma, The International Federation of Anti-Leprosy Associations (ILEP), London, UK; The Netherlands Leprosy Relief (NLR), Amsterdam, The Netherlands, 2011.
  32. R. Reis and H. Meinardi, “ILAE/WHO ‘out of the shadows campaign’ stigma: does the flag identify the cargo?” Epilepsy & Behavior, vol. 3, no. 6, pp. 33–37, 2002. View at Publisher · View at Google Scholar
  33. A. M. Paschal, S. R. Hawley, T. S. Romain et al., “Epilepsy patients' perceptions about stigma, education, and awareness: preliminary responses based on a community participatory approach,” Epilepsy & Behavior, vol. 11, no. 3, pp. 329–337, 2007. View at Publisher · View at Google Scholar · View at Scopus
  34. D. Bhalla, K. Chea, C. Hun et al., “Population-based study of epilepsy in Cambodia associated factors, measures of impact, stigma, quality of life, knowledge-attitude-practice, and treatment gap,” PLoS ONE, vol. 7, no. 10, Article ID e46296, 2012. View at Publisher · View at Google Scholar · View at Scopus
  35. N. Prus and A. C. Grant, “Patient beliefs about epilepsy and brain surgery in a multi-cultural urban population,” Epilepsy & Behavior, vol. 17, no. 1, p. 46, 2010. View at Google Scholar
  36. P. T. Fernandes, P. C. B. Salgado, A. L. A. Noronha et al., “Epilepsy stigma perception in an urban area of a limited-resource country,” Epilepsy & Behavior, vol. 11, no. 1, pp. 25–32, 2007. View at Publisher · View at Google Scholar · View at Scopus
  37. G. A. Baker, A. Jacoby, J. Gorry, J. Doughty, and V. Ellina, “Quality of life of people with epilepsy in Iran, the Gulf, and Near East,” Epilepsia, vol. 46, no. 1, pp. 132–140, 2005. View at Publisher · View at Google Scholar · View at Scopus
  38. F. Rafael, D. Houinato, P. Nubukpo et al., “Sociocultural and psychological features of perceived stigma reported by people with epilepsy in Benin,” Epilepsia, vol. 51, no. 6, pp. 1061–1068, 2010. View at Publisher · View at Google Scholar · View at Scopus
  39. M. Atadzhanov, A. Haworth, E. N. Chomba, E. K. Mbewe, and G. L. Birbeck, “Epilepsy-associated stigma in Zambia: what factors predict greater felt stigma in a highly stigmatized population?” Epilepsy & Behavior, vol. 19, no. 3, pp. 414–418, 2010. View at Publisher · View at Google Scholar · View at Scopus
  40. C. K. Mbuba, A. Abubakar, P. Odermatt, C. R. Newton, and J. A. Carter, “Development and validation of the Kilifi Stigma Scale for Epilepsy in Kenya,” Epilepsy and Behavior, vol. 24, no. 1, pp. 81–85, 2012. View at Publisher · View at Google Scholar · View at Scopus
  41. T. Shibre, A. Alem, R. Tekle-Haimanot, and G. Medhin, “Perception of stigma in people with epilepsy and their relatives in Butajira, Ethiopia,” Ethiopian Journal of Health Development, vol. 20, no. 3, 2006. View at Google Scholar
  42. C. KathomiMbuba, Epilepsy treatment gap, associated risk factors and intervention strategies in Kilifi, Kenya, University of Basel, Basel, Switzerland, 2011.