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Rehabilitation Research and Practice
Volume 2011, Article ID 871237, 7 pages
http://dx.doi.org/10.1155/2011/871237
Clinical Study

Identification of Personal Factors in Motor Neurone Disease: A Pilot Study

Department of Medicine, Dentistry and Health Sciences, The University of Melbourne, Royal Melbourne Hospital, Poplar Road, Parkville, Melbourne, VIC 3052, Australia

Received 10 March 2011; Accepted 19 May 2011

Academic Editor: Johannes Bussmann

Copyright © 2011 Louisa Ng and Fary Khan. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Abstract

Motor neurone disease (MND) is a devastating condition. This preliminary study aims to identify relevant personal factors affecting the experience of living with MND from the perspective of persons with MND (pwMND) in an Australian cohort. A prospective cross-sectional survey of pwMND ( 𝑛 = 4 4 ) using an open-ended questionnaire identified personal factors that were categorised thematically. Standardised questionnaires assessed disease severity: depression, anxiety, and stress and coping strategies. Personal factors identified included demographic factors (socioeconomic status), emotional states (depression, anxiety, and fear), coping strategies (problem-based coping and denial), personality, beliefs (religious and personal values), attitudes (of the patient), and others (such as perceived support). An understanding of personal factors by treating clinicians is essential in the provision of optimal care in MND. This study may assist in the development of personal factors within the International Classification of Functioning, Disability, and Health for improved consensus of care and communication amongst treating clinicians.