Table 2: Personal factors reported by participants with motor neurone disease (MND) which affected their experience of living with MND.

Personal factors categoryPersonal factors examples

Demographic factorsGender
Race
Age
Educational status
Socioeconomic status

Emotional statesFrustration
Depression
Stress
Anxiety
Fear
Worry
Degrading
Grumpy
Loss of confidence
Anger
Self-esteem
Embarrassment
Hope (both hopeful and hopeless)
Guilt
Grief
Loss
Gratitude

Coping strategies and stylesProblem solving
Search for information
Planning
PositivityAcceptance
Humour
Religion
Using support
Denial
Avoidance

PersonalityStubborn
Easy-going

BeliefsReligious beliefs
Self-esteem

Attitudes (of the patient)Grateful attitude (towards family and health professionals)
Fighting attitude
Attitude towards assisted suicide
Being organised

“Other”Perceived support