|
Study
(author, year) | Purpose | Population/
sample | Research
design | Intervention | Comparison | Outcome
measures/
scales | Results |
|
| A’Campo et al. (2010) [24] | Formative evaluation of standardized psychosocial education program on quality of life | Caregivers
= 137
Parkinson’s patients
= 151 | Quasiexperimental
design | 8 weeks parallel program for Parkinson’s patient and caregivers | None | MMSE,
BELA-P-k,
BELA-A-k,
Bb, PDQ-39,
SDS, Nfh,
EQ-5D VAS, and
Mood VAS | Mood, social, and emotional functioning and achievement capabilities improved significantly (). Depression did not improve |
|
| Carter et al. (2008) [1] | Understand motor and nonmotor symptom impact on caregiver strain | 219 spouses,
mean age: 66.7 | Correlational
design | None | None | FCI, CES-D, and
UPDRS | Nonmotor symptoms cause ×2–4-fold increase in burden () |
|
| D’Amelio et al. (2009) [23] | Determine predictors of caregiver burden | 40 Parkinson patients and caregivers | Correlational
design | None | None | CBI, HY, GDS, NPI,
UPDRS-ME, and
MMSE | Mental symptoms
() and Parkinson’s severity of disease (<0.0001) correlated with caregiver distress |
|
| Kelly et al. (2012) [11] | Determine HRQoL in people with Parkinson’s and its effect on caregiver strain | 97 caregiver dyads
84% spouse
(part of larger RCT study) | Cross-sectional correlational
design | None | None | EQ-5D,
PDQ-39,
MCSI,
6MWT, and
HY | Good HRQoL of PD patients correlated with low caregiver strain (rho 0.43, ) |
|
| Leroi et al. (2012) [9] | Determine care burden in apathy and impulse control in Parkinson’s
| 71 carer dyads | Cross-sectional correlational
design | None | Control group | UPDRS,
HY, BIS-11,
AES-C, ZBI,
LEDD, and HADS | Care burden is significant in impulse control ( and ) |
|
| de Villiers et al. (2008) [17] | Investigate needs, roles, and experiences of primary caregivers in Parkinson’s | 126 participants
77% female
27% male | Descriptive quantitative | None | None | Developed
scale: no name | Isolation (57%)
Lack of time (47%)
Felt powerless (45%)
Felt stress (43%)
Finance issues (40%)
Physically drained (32%) |
|
| Rongve et al. (2010) [25] | Identify sleep disturbances in subtypes of dementia and explore clinical correlates | 151 participants | Cross-sectional
comparative design | None | Alzheimer’s disease | NPI, Epsworth Sleepiness Scale, MSQ,
MADRS, REM, | More sleep disturbances in PD (89%) versus Alzheimer’s (64%).
|
| Shim et al. (2011) [10] | Understand correlates of care mutuality in Parkinson’s and Alzheimer’s disease | 152 dyads for Parkinson’s and Alzheimer’s
91 control (16% attrition in control) | Retrospective multilevel
design | None | Alzheimer’s disease and
control | MSFCI,
Lawton, IADL, and
CESD | Longer caregiving years (), and increased IADL () increase care mutuality; increased depression in carer decreased care-mutuality () |
|
| Tokunaga et al. (2009) [19] | Investigate caregiver burden | 54 pairs Parkinson’s
48 pairs control
age 65 and older | Unmatched case control design | None | Frail elderly | J-ZBI,
CES-D, and
DBD | Parkinson’s caregiver spent less time caregiving for ADLs (2.78 hours) compared to frail elderly (11.2 hours)
|
|
