Table of Contents Author Guidelines Submit a Manuscript
The Scientific World Journal
Volume 2014, Article ID 274036, 7 pages
http://dx.doi.org/10.1155/2014/274036
Research Article

The Psychosocial Experience of Adolescents with Haematological Malignancies in Jordan: An Interpretive Phenomenological Analysis Study

1Children and Young People’s Mental Health, Faculty of Nursing, Jerash University, P.O. Box 311, Jerash 26150, Jordan
2School of Nursing and Midwifery, Curtin Health Innovation, Research Institute, Curtin University, GPO Box U 1987, Perth, WA 6845, Australia

Received 30 August 2013; Accepted 12 October 2013; Published 5 January 2014

Academic Editors: A. M. Mitchell and M. A. Rose

Copyright © 2014 Omar Al Omari and Dianne Wynaden. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

Linked References

  1. Jordanian Department of Statistics, Jordan in Figures, Department of Statistics, 2008, http://www.dos.gov.jo.
  2. King Husain Cancer Centre, Cancer and Population Statistics Amman: King Husain Cancer Centre, 2005, http://www.khcc.jo/stats/cancerrates.ASP.
  3. M. Tarawneh and M. Tarawneh, Jordan Cancer Registry—Cancer Incidence in Jordan, Minestry of health, Amman, Jordan, 2007.
  4. U.S. Department of Health and Human Services NIoH, National, Cancer Institute LYAACt, with gracifaaya, review crotaayaop, group, http://planning.cancer.gov/library/AYAO_PRG_Report_2006_FINAL.pdf.
  5. S. Kreitler and M. B. Arush, Psychosocial Aspects of Pediatric Oncology, John Wiley & Sons, West Sussex, UK, 2004.
  6. A. I. Mahadeen, D. H. Arabiat, R. H. Abdelkader, and A. M. Hamdan-Mansour, “Maternal distress among Jordanian mothers caring for children with cancer in Jordan,” Jordan Medical Journal, vol. 44, no. 4, pp. 404–412, 2010. View at Google Scholar · View at Scopus
  7. E. A. Earle and C. Eiser, “Children's behaviour following diagnosis of acute lymphoblastic leukaemia: a qualitative longitudinal study,” Clinical Child Psychology and Psychiatry, vol. 12, no. 2, pp. 281–293, 2007. View at Publisher · View at Google Scholar · View at Scopus
  8. S. S. Larouche and L. Chin-Peuckert, “Changes in body image experienced by adolescents with cancer,” Journal of Pediatric Oncology Nursing, vol. 23, no. 4, pp. 200–209, 2006. View at Publisher · View at Google Scholar · View at Scopus
  9. D. C. M. Seitz, T. Besier, and L. Goldbeck, “Psychosocial interventions for adolescent cancer patients: a systematic review of the literature,” Psycho-Oncology, vol. 18, no. 7, pp. 683–690, 2009. View at Publisher · View at Google Scholar · View at Scopus
  10. K. Enskär and L. von Essen, “Prevalence of aspects of distress, coping, support and care among adolescents and young adults undergoing and being off cancer treatment,” European Journal of Oncology Nursing, vol. 11, no. 5, pp. 400–408, 2007. View at Publisher · View at Google Scholar · View at Scopus
  11. H. Hokkanen, E. Eriksson, O. Ahonen, and S. Salantera, “Adolescents with cancer: experience of life and how it could be made easier,” Cancer Nursing, vol. 27, no. 4, pp. 325–335, 2004. View at Publisher · View at Google Scholar · View at Scopus
  12. K. Stegenga and P. Ward-Smith, “On receiving the diagnosis of cancer: the adolescent perspective,” Journal of Pediatric Oncology Nursing, vol. 26, no. 2, pp. 75–80, 2009. View at Publisher · View at Google Scholar · View at Scopus
  13. E. A. Earle and C. Eiser, “Children's behaviour following diagnosis of acute lymphoblastic leukaemia: a qualitative longitudinal study,” Clinical Child Psychology and Psychiatry, vol. 12, no. 2, pp. 281–293, 2007. View at Publisher · View at Google Scholar · View at Scopus
  14. King Hussein Cancer Centre, Cancer Myths and Facts, King Hussein Cancer Centre, 2011, http://www.khcc.jo/Cancer_myths_and_facts.aspx.
  15. M. Hedström, K. Haglund, I. Skolin, and L. Von Essen, “Distressing events for children and adolescents with cancer: child, parent, and nurse perceptions,” Journal of Pediatric Oncology Nursing, vol. 20, no. 3, pp. 120–132, 2003. View at Publisher · View at Google Scholar · View at Scopus
  16. B. Price, “Understanding patient accounts of body image change,” Cancer Nursing Practice, vol. 8, no. 6, p. 29, 2009. View at Google Scholar
  17. M. L. Wallace, D. Harcourt, N. Rumsey, and A. Foot, “Managing appearance changes resulting from cancer treatment: resilience in adolescent females,” Psycho-Oncology, vol. 16, no. 11, pp. 1019–1027, 2007. View at Publisher · View at Google Scholar · View at Scopus
  18. H. Williamson, D. Harcourt, E. Halliwell, H. Frith, and M. Wallace, “Adolescents' and parents' experiences of managing the psychosocial impact of appearance change during cancer treatment,” Journal of Pediatric Oncology Nursing, vol. 27, no. 3, pp. 168–175, 2010. View at Publisher · View at Google Scholar · View at Scopus
  19. L. De Witt and J. Ploeg, “Critical appraisal of rigour in interpretive phenomenological nursing research,” Journal of Advanced Nursing, vol. 55, no. 2, pp. 215–229, 2006. View at Publisher · View at Google Scholar · View at Scopus
  20. S. Carpenter, Qualitative Research in Nursing Advancing the Humanistic Imperative, Lippincott Williams & Wilins, Philadelphia, Pa, USA, 4 edition, 2007.
  21. J. Smith, P. Flowers, and M. Larkin, Interpretative Phenomenological Analysis: Theory, Method and Research, Sage Publications, London, UK, 2009.
  22. U. H. Graneheim and B. Lundman, “Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness,” Nurse Education Today, vol. 24, no. 2, pp. 105–112, 2004. View at Publisher · View at Google Scholar · View at Scopus
  23. V. Jenkins, L. Fallowfield, and J. Saul, “Information needs of patients with cancer: results from a large study in UK cancer centres,” British Journal of Cancer, vol. 84, no. 1, pp. 48–51, 2001. View at Publisher · View at Google Scholar · View at Scopus
  24. M. Sandelowski, “Focus on research methods: whatever happened to qualitative description?” Research in Nursing and Health, vol. 23, no. 4, pp. 334–340, 2000. View at Google Scholar · View at Scopus
  25. M. Barrera, N. D'Agostino, J. Gammon, L. Spencer, and S. Baruchel, “Health-related quality of life and enrollment in phase 1 trials in children with incurable cancer,” Palliative & supportive care, vol. 3, no. 3, pp. 191–196, 2005. View at Google Scholar · View at Scopus
  26. M. Griffiths, R. Schweitzer, and P. Yates, “Childhood experiences of cancer: an interpretative phenomenological analysis approach,” Journal of Pediatric Oncology Nursing, vol. 28, no. 2, pp. 83–92, 2011. View at Publisher · View at Google Scholar · View at Scopus
  27. M. A. Ritchie, “Sources of emotional support for adolescents with cancer,” Journal of Pediatric Oncology Nursing, vol. 18, no. 3, pp. 105–110, 2001. View at Publisher · View at Google Scholar · View at Scopus
  28. R. L. Woodgate, “Feeling states: a new approach to understanding how children and adolescents with cancer experience symptoms,” Cancer Nursing, vol. 31, no. 3, pp. 229–238, 2008. View at Publisher · View at Google Scholar · View at Scopus
  29. L.-M. Wu, C.-C. Chin, J. E. Haase, and C.-H. Chen, “Erratum: coping experiences of adolescents with cancer: a qualitative study,” Journal of Advanced Nursing, vol. 65, no. 12, p. 2733, 2009. View at Publisher · View at Google Scholar · View at Scopus
  30. L. J. Blackhall, S. T. Murphy, G. Frank, V. Michel, and S. Azen, “Ethnicity and attitudes toward patient autonomy,” Journal of the American Medical Association, vol. 274, no. 10, pp. 820–825, 1995. View at Google Scholar · View at Scopus
  31. L. O. Gostin, “Informed consent, cultural sensitivity, and respect for persons,” Journal of the American Medical Association, vol. 274, no. 10, pp. 844–845, 1995. View at Google Scholar · View at Scopus
  32. H. Kyngäs, R. Mikkonen, E.-M. Nousiainen et al., “Coping with the onset of cancer: coping strategies and resources of young people with cancer,” European Journal of Cancer Care, vol. 10, no. 1, pp. 6–11, 2001. View at Publisher · View at Google Scholar · View at Scopus
  33. G. Masera, J. J. Spinetta, M. Jankovic, A. R. Ablin, G. J. D'Angio, J. V. Dongen-Melman et al., “Guidelines for assistance to terminally Ill children with cancer: a report of the SIOP working committee on psychosocial issues in pediatric oncology,” Medical and Pediatric Oncology, vol. 32, no. 1, pp. 44–48, 1999. View at Google Scholar
  34. A. A. Carlsson, A. Kihlgren, and V. Sørlie, “Embodied suffering: experiences of fear in adolescent girls with cancer,” Journal of Child Health Care, vol. 12, no. 2, pp. 129–143, 2008. View at Publisher · View at Google Scholar · View at Scopus
  35. B. Novakovic, T. R. Fears, L. H. Wexler et al., “Experiences of cancer in children and adolescents,” Cancer Nursing, vol. 19, no. 1, pp. 54–59, 1996. View at Publisher · View at Google Scholar · View at Scopus
  36. S. Van den Branden and B. Broeckaert, “Necessary interventions: muslim views on pain and symptom control in english sunni e-fatwas,” Ethical Perspectives, vol. 17, no. 4, pp. 626–651, 2010. View at Google Scholar
  37. A. Sachedina, “End-of-life: the Islamic view,” The Lancet, vol. 366, no. 9487, pp. 774–779, 2005. View at Publisher · View at Google Scholar · View at Scopus
  38. T. J. Smith and K. Swisher, “Telling the truth about terminal cancer,” Journal of the American Medical Association, vol. 279, no. 21, pp. 1746–1748, 1998. View at Publisher · View at Google Scholar · View at Scopus
  39. C.-H. Yeh, “Life experience of Taiwanese adolescents with cancer,” Scandinavian Journal of Caring Sciences, vol. 16, no. 3, pp. 232–239, 2002. View at Publisher · View at Google Scholar · View at Scopus
  40. N. A. Williams, G. Davis, M. Hancock, and S. Phipps, “Optimism and pessimism in children with cancer and healthy children: confirmatory factor analysis of the youth life orientation test and relations with health-related quality of life,” Journal of pediatric psychology, vol. 35, no. 6, pp. 672–682, 2010. View at Publisher · View at Google Scholar · View at Scopus
  41. K. Enskär, M. Carlsson, M. Golsäter, and E. Hamrin, “Symptom distress and life situation in adolescents with cancer,” Cancer Nursing, vol. 20, no. 1, pp. 23–33, 1997. View at Publisher · View at Google Scholar · View at Scopus
  42. D. R. Shaffer and K. Kipp, Developmental Psychology: Childhood and Adolescence, Wadsworth Cengage Learning, Belmont, Mass, USA, 8 edition, 2010.
  43. S. El-Ghazali, “Is it wise to tell the truth, the whole truth, and nothing but the truth to a cancer patient?” Annals of the New York Academy of Sciences, vol. 809, pp. 97–108, 1997. View at Google Scholar · View at Scopus
  44. P. Farmer, J. Frenk, F. M. Knaul et al., “Expansion of cancer care and control in countries of low and middle income: a call to action,” The Lancet, vol. 376, no. 9747, pp. 1186–1193, 2010. View at Publisher · View at Google Scholar · View at Scopus
  45. W. Petro-Nustas, M. E. Norton, and I. Al-Masarweh, “Risk factors for breast cancer in Jordanian women,” Journal of Nursing Scholarship, vol. 34, no. 1, pp. 19–25, 2002. View at Google Scholar · View at Scopus
  46. V. Eapen and T. Revesz, “Psychosocial correlates of paediatric cancer in the United Arab Emirates,” Supportive Care in Cancer, vol. 11, no. 3, pp. 185–189, 2003. View at Google Scholar · View at Scopus
  47. A. Jadalla and H. Sharaya, “A Jordanian view about cancer knowledge and attitudes,” Cancer Nursing, vol. 21, no. 4, pp. 269–273, 1998. View at Publisher · View at Google Scholar · View at Scopus
  48. R. L. Woodgate, “Feeling states: a new approach to understanding how children and adolescents with cancer experience symptoms,” Cancer Nursing, vol. 31, no. 3, pp. 229–238, 2008. View at Publisher · View at Google Scholar · View at Scopus
  49. B. J. Zebrack, J. Yi, L. Petersen, and P. A. Ganz, “The impact of cancer and quality of life for long-term survivors,” Psycho-Oncology, vol. 17, no. 9, pp. 891–900, 2008. View at Publisher · View at Google Scholar · View at Scopus