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| Source paper/location of study | Sample population (age and gender) | Data collection and schedule | Location of data collection | Specific topic covered in study | Method of analysis |
|
(1) Sabari et al. (2000) [48]
(USA) | Aged 45–75 years
6 stroke survivors; 5 male
4 female carers of stroke survivors | 2 Focus groups (in place of regular support group meetings) | Home environment of one of the participants | Encouraged as normal as possible discussions as per support group meetings were found to be discussions about experiences of rehab | Grounded theory approach |
(2) Proot et al. (2000) [49]
(Netherlands) | 17 stroke patients; aged 50–85 years; 7 female | Interview 6–11 weeks after admission to rehabilitation ward | Hospital setting | Open ended interview questions based on autonomy which patients were assisted to define for themselves initially
How they defined autonomy
Changes in time on persons autonomy
Constraints and improvements to their autonomy
Approach of health professionals and family to their autonomy | Grounded theory approach |
(3) Burton (2000) [50]
(U.K) | 6 stroke patients; aged 52–81;
4 female | Monthly interviews for 12 months maximum post-stroke | Initially hospital then home environment | Informal and unstructured patient asked to tell their story | Grounded theory approach |
(4) Bendz (2003) [37]
(Sweden) | 15 stroke patients All <65 years old;
9 male | Interviews 3, 6 and 12 months after admission from stroke | Home environment | Semi-structured questions re: patient’s perception of their stroke and ensuing rehabilitation | Interpretative approach to create categories on analysis (grounded theory approach) |
(5) Röding et al. (2003) [38]
(Sweden) | 5 stroke patients; aged 37–54;
3 male | Interview | Stipulated by participants: 4 in home environment | Hospital stay
Rehabilitation period
Current situation | Grounded theory approach |
(6) Cowdell and Garrett, (2003) [39]
(U.K) | 8 stroke patients; age unknown | Interview | Hospital ward | Participant current levels of activity. Views on recreational activity prior to stroke and after-stroke | Grounded theory approach |
(7) Gibbon, (2004) [51]
(U.K) | 15 stroke patients aged 47–84;
8 male | One interview | Home environment | Impact of stroke
Meaning of rehabilitation
Key contributors
Goal setting
Discharge home | Latent content analysis/grounded theory approach |
(8) Olofsson et al. (2005) [52]
(Sweden) | 9 stroke patients; aged 64–83;
5 females | Interviews
1: 4 months after-stroke
2: following care at stroke centre | Home environment | Patient’s stay in hospital
Experiences of coming home
Experiences of rehabilitation
Experiences of follow-up appointments | Grounded theory approach |
(9) Morris et al. (2007) [53]
(U.K) | 10 stroke patients; aged 45–81; 8 male
5 carers; aged 45–83; 3 female | A focus group (1.5 hours) | Hospital setting | Chronological questions sequenced from the stroke event to discharge | Grounded theory approach |
(10) Mangset et al. (2008) [54]
(Norway) | 12 stroke patients;
aged 60–87 yrs;
7 female | Interviews
(1–6 weeks after admission; 3 months later) | Initially hospital setting followed by home environment | Share experiences in connection with the stroke incident
Experiences of being a stroke patient
Experience of the health service
Experience of the rehabilitation process | Grounded theory approach |
(11) Ellis-Hill et al. (2009) [55]
(U.K) | 20 stroke patients
13 carers | Interview within a month of discharge | Home environment | Talk about the effects of their stroke
Their priorities for recovery
Their views about therapy and services | Framework analysis with the grounded theory approach |
(12) Erikson et al. (2010) [26]
(Sweden) | 9 stroke survivors; Aged 42–61 years;
6 male | Interviews (1, 3, 6 and 12 months) | At 1 month: hospital setting
At 3, 6, and 12 months: outpatient clinic | Experiences performing daily activities relative to those experiences prior to acquiring a stroke
Experiences of daily life with stroke | Grounded theory approach |
(13) Wottrich et al. (2012) [56]
(Sweden) | 5 stroke patients; aged 44–70 years;
3 female | Interviews
1: 1–7 days prior to discharge
2: 13–30 days after discharge
3: 3–4 months after discharge | Interview 1: hospital setting
Interviews 2 and 3: home environment | Experience of ending contact with staff on the ward
Experience of being discharged and coming home and of being at home
Experience of everyday life today
Strategies for handling a changed everyday situation/life situation
Conceptions about one’s future everyday situation/life situation
Experience of important aspects that help or hinder progress in adapting to a changed everyday situation/life situation | Grounded theory approach |
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