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The Scientific World Journal
Volume 2014, Article ID 613592, 19 pages
Review Article

The Experience of Parkinson’s Disease: A Systematic Review and Meta-Ethnography

1School of Sport, Exercise and Rehabilitation Sciences, University of Birmingham, Birmingham B15 2TT, UK
2School of Health and Social Care, University of Greenwich, London SE9 2UG, UK

Received 31 July 2014; Revised 3 November 2014; Accepted 6 November 2014; Published 30 November 2014

Academic Editor: Ching-Yi Wu

Copyright © 2014 Andrew Soundy et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.


There has been little attempt to summarise and synthesise qualitative studies concerning the experience and perception of living with Parkinson’s disease. Bringing this information together would provide a background to understand the importance of an individual’s social identity on their well-being and hope. Three primary aims were identified (a) understanding the importance of social identity and meaningful activities on individuals’ well-being, (b) identifying factors and strategies that influence well-being and hope, and (c) establishing a model that relates to an individual’s hope and well-being. Three stages were undertaken including a traditional electronic search, a critical appraisal of articles, and a synthesis of studies. Qualitative articles were included that considered the experience of living with Parkinson’s disease. Thirty seven articles were located and included in the review. Five themes were identified and the themes were used to inform development of a new model of hope enablement. The current review furthered understanding of how physical symptoms and the experience of Parkinson’s disease affect the individual’s well-being and hope. Social identity was established as a key factor that influenced an individual’s well-being. Being able to maintain, retain, or develop social identities was essential for the well-being and hope of individuals with Parkinson’s disease. Understanding the factors which prevent or can facilitate this is essential.