Alessandra Solari

Fondazione IRCCS Istituto Neurologico Carlo Besta, Italy


Alessandra Solari is a Neurologist and obtained an M.D. degree. Solari is Acting Head, Unit of Neuroepidemiology, Fondazione IRCCS Istituto Neurologico C. Besta, Milan, Italy. Solari’s main area of research is the validation of instruments and outcome measures (chiefly patient‐reported outcome measures, PROMs) for clinical, epidemiologic, and quality of care studies in neurological diseases, particularly multiple sclerosis (MS). Her other main interest is the design and conduction of randomized controlled trials (RCT) on complex interventions. Solari designed and implemented a patient self‐assessed version of the Minimal Record of Disability for MS; she validated the Italian version of the 54‐item MS Quality of Life (the most used disease‐specific and health‐related quality of life questionnaire), the Italian version of the Chicago Multiscale Depression Inventory, and the Italian version of the Control Preference Scale. Solari’s team recently produced a short questionnaire on MS knowledge for patients and their significant others, the MS knowledge questionnaire (MSKQ), and a questionnaire on satisfaction with communication of the MS diagnosis (COSM‐R, COSM‐S). The most recent projects are the Sapere Migliora Information Aid for Newly Diagnosed MS Patients and the Palliative Network for Severely Affected Adults with MS in Italy (PeNSAMI) study, on a home‐based palliative care service. Solari’s work has been published in leading medical journals and texts including Lancet Neurology, Neurology, Brain, Journal of Neurology Neurosurgery Psychiatry, and Multiple Sclerosis Journal. She was a Member of the Scientific Committee of the Fondazione Italiana Sclerosi Multipla, FISM (2008–2011) and then of the FISM Secretariat. She has also been a Member of the Executive Board of Rehabilitation in MS Network (RIMS) since 2011.

Biography Updated on 13 July 2014

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